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My Miracle Story

The morning of December 28, 1998 was filled with anticipation.  I had spent the previous five weeks on complete bedrest in the hospital, and now the day had arrived for our daughter, Karina, to be born.  I’d spent both Thanksgiving and Christmas on the high-risk pregnancy floor at Swedish Medical Center in Seattle and was really looking forward to resuming a normal life with my husband, Tom, my two-year-old son, Giancarlo and our new baby.

 

I looked around at the bare walls and empty windowsill.  Just the day before, Tom had taken down the Christmas tree, the lights, the wreath and the stockings.  He had packed up the poinsettias that had covered my windowsill.  The nurses had joked with us that if there had been a contest for “most festive room,” we would have won hands down.

 

At about 9:00 in the morning, my obstetrician performed an amniocentesis on me to check whether Karina’s lungs were mature.  Thanks to the steroid injections given to me at the beginning of my hospital stay, her lungs had fully matured, although it was still five weeks before her due date.  We prepared for the C-section to be performed later in the day.

 

After hours of waiting, we were finally sent to the operating room where I was prepped and draped.  The only anxiety I had was about the spinal block.  I squeezed my eyes shut and tried to think distracting thoughts—I was only partially successful in blocking out the pain of the big needle going into my lower back.  But once I was numb, we were ready to get the show on the road.

 

A scheduled C-section doesn’t have all the drama of a “natural childbirth,” but for medical reasons, it’s the only birth experience I’ve had and I’ve never felt like I missed out.  In fact, I appreciated the fact that I was calm and pain-free through both of my deliveries.  After Karina was delivered, Tom brought her up to my head and my eyes took in her beauty for the first time.  I at once felt love and admiration for this little baby, and relief that our ordeal was finally over.

 

After I was stitched up, I was wheeled to the recovery room.  I had been in there for about 45 minutes when suddenly, I started gasping for breath.  “Tom, I can’t breathe!”

 

“Calm down, just try to take deep breaths…”

 

“I can’t!  I can’t!  Help me!”

 

One of the doctors came in and started massaging my abdomen, causing me to wince in pain.  Then I was out.

 

I remember waking up again, and this time there appeared to be more people in the room.  The person who was massaging my abdomen was really hurting me, and I recall trying to hit him and push his hands away.  I also vaguely remember someone trying to put a needle in my neck.  I was terrified.  Then I was out again.  Or at least I have no recollection of what happened next.

 

 

Tom:  “Something’s wrong!” I yelled to the nurse and the anesthesiologist.  One of them took her blood pressure and discovered it was dropping quickly.  It was my worst nightmare--she had gone into cardiac arrest.  A code was called. Doctors, nurses, respiratory therapists, pharmacists and other support people rushed to the small room on the Labor and Delivery floor.  Fortunately, the anesthesiologist had intubated Meg right away so that oxygen could continue getting to her brain.  Another doctor was massaging her abdomen to try to get her uterus to clamp down and stop bleeding.  It wasn't working--blood was pouring out of her.  As soon as her heart stopped they began doing CPR, first with chest compressions, then a defibrillator.  For 45 minutes, I watched from where I sat on the gurney just outside the door.  With every chest compression and every electric shock, I could see her feet flopping up and down as the doctors desperately tried to save her life.  There were multiple IV’s in place, unit after unit of blood was being transfused into her, and at one point, someone came running down the hall with blood from Spokane--Meg had wiped out the Puget Sound Blood Center.  To say I was in shock would be an understatement.

 

I literally saw my life changing at that moment.  Things were looking grim--she had undergone resuscitation for 45 minutes with no success.  The elation I had felt after the birth of our daughter just an hour earlier was replaced by unspeakable fear and dread.  I thought about what my life would be like without Meg.  I thought about being a single father with a two-year-old and a newborn.  I thought about selling the house, or maybe getting a roommate to help with the payments.  I immediately called my brother, Christopher, and my dad, Fred.  They rushed to the hospital to be with me.

 

After about 45 minutes of CPR, someone came up to me and gently asked, “Would you like some spiritual support?”

 

 "Absolutely."  Things were not looking good.  I wondered how long the doctors would keep trying before giving up.

 

"Does it matter what religion?"  

 

"No, just get me anyone."  A few moments later, Christine, one of the chaplains, appeared in the hallway.  She began praying with me--it was the most beautiful prayer I had ever heard in my life.  I remember feeling that she somehow had a “direct line” to God.

 

Two minutes later, from inside the room, I heard the words, "We've got a heartbeat!"  Our prayers had been answered—I couldn’t help but think that we had just witnessed a miracle.  When Dad and Christopher arrived, all four of us went down to the chapel and continued to pray to God that Meg's life would be spared.

 

We weren't out of the woods yet.  Meg was stabilized, and then brought down to the Intensive Care Unit.  At this point, no one knew what had caused the cardiac arrest.  All they knew was that she was bleeding uncontrollably and was having coagulation problems (Disseminated Intravascular Coagulopathy, also known as DIC).  They had to pack her nostrils with gauze because blood was streaming out of her nose and they feared she would bleed to death.  A risky decision was made to bring her to Interventional Radiology to embolize the bleeding suspects.  That decision was another lifesaving one, because at that point, she would have probably died within the hour.

 

Over the next several days, she required massive fluid resuscitation requiring approximately 50 liters of fluid.  This resulted in the swelling of her entire body.  She had about 100 extra pounds of fluid in her and was unrecognizable.  Her face had swollen so much that her features looked like they were flat against her face.  Her neck, mouth and nose were one big blob and her eyes were swollen shut.  Her sides had ripped open because her skin had been stretched beyond the breaking point.

 

On December 31st, three days after the cardiac arrest, exploratory surgery was performed.  Several liters of clot were removed, but no active sites of bleeding could be found.  A decision was made to terminate the operation.  The doctors told me she had 24 hours.  The chaplain was called and the Sacrament of Healing was administered (formerly known as Last Rites).  Miraculously, she made it through the night, and continued to fight the battle of her life.

 

In addition to her bleeding problems, she suffered kidney failure, liver failure and ARDS (acute respiratory distress syndrome).  She was on kidney dialysis for four hours every day to get the extra fluids and toxins out of her system.  Her liver was in total distress trying to deal with all the toxins, medications and leftover blood products.  She was still intubated and on a ventilator.  Things were not looking good.

 

 

Meg:  The first time I became aware that I was in Intensive Care was six days after I had given birth, on January 3rd.  I was trying to open my eyes and I couldn't.  Oh no, I must have left my contacts in my eyes when I had the C-section and now they're stuck to my eyeballs.  Great.  Now what am I going to do?

 

Suddenly, I heard Tom's voice.  "Meg, Meg can you hear me?"  I nodded my head.  "Meg, you're okay.  You're in the ICU on a ventilator and it's January 3rd.  Don't worry, I'll be right here with you.  Now try and get some rest."  I slowly became aware of something in my mouth and a tight strap starting at the corners of my mouth and going around the back of my neck.  I was mortified.

 

Being on a ventilator was the single most traumatic thing I experienced during my whole ordeal.  I couldn't talk because I had a bite block in my mouth, which was held on by the neck strap.  The strap was so tight that it caused indentations in my jaw line.  The bite block held the endotracheal tube--a tube that went down my airway and into my lungs.  Several times a day, fluid would accumulate in my lungs, causing my breathing to be labored.  The only solution was to be suctioned.  Anyone who has been on a ventilator knows that suctioning is one of the most dreaded procedures one can experience.  A small suctioning tube is placed in the endotracheal tube and pushed down into the lungs.  Saline is then put into the suctioning tube and when you feel it in your lungs, you're supposed to start trying to cough.  This allows the fluid to be suctioned out of the lungs and you can breathe better.  I always dreaded suctioning, but I also felt better after it was done.  So I got used to it, but I never liked it.

 

What I remember from my early days in the ICU was being woken up on a daily basis very early in the morning to be weighed and have a chest x-ray done.  I’d go through four hours of dialysis every day and try to sleep through it. Sometimes Tom would come to the hospital first thing in the morning, other days he would be there at lunchtime.  As soon as he’d leave, I’d become enveloped in an anxiety that was almost suffocating.  I’d immediately call for a nurse to come to my room just so I wouldn’t be alone.  They’d try to get me to relax and go to sleep, but it was so difficult.  And when I did sleep, there were the dreams.

 

One very vivid dream I had was that a beautiful dark-haired woman came to my room and said the most wonderful prayer.  It was as if an angel had come to me, and I literally heard harps playing in the background.  She asked me if I wanted to go to the chapel with her.  She made me feel so warm and comforted.  In my dreamlike state, I floated through the hallways of Swedish Medical Center until I got to the chapel, but then I couldn't find her.  The hallways were dark, in fact, they were more like tunnels.  But I wasn't scared, and I felt like everything was going to be okay.  I just waited and waited at the chapel doors, and then somehow I ended up back in my hospital bed.  Later, I told Tom of my dream and I described the woman I saw.  He told me that I was describing Christine, the chaplain who had said the prayer the night of the cardiac arrest.  This is one of many dreams that I had while unconscious, but after doing some reading, I believe this dream may have represented a near-death experience.

 

Through this entire ordeal, my husband was by my side every step of the way.  I was terrified and depressed but he did everything he could to keep my spirits up.  Had he not been there for me, I don’t think I would have made it.

 

 

Tom:  Fortunately, I had a very understanding employer who made it clear to me that Meg was to take priority over my work.  I went to the hospital everyday and became very much a presence in the ICU.  Since Meg was unable to communicate, I felt I needed to be her advocate.  I wanted to make sure that the doctors and nurses saw her as a person, not just another poor soul on a ventilator.  I brought pictures of our family into the room so that the staff could see how she really looked.  Meg had also done quite a bit of work as an on-camera spokesperson, so I found a video in which she was confidently explaining bone marrow transplant procedures to potential transplant recipients.  I wanted the doctors and nurses to hear her voice.  I wanted them to become emotionally connected to her.  They did connect with her, so much so that one of the nurses actually had to request not to work with Meg anymore.  Meg was suffering so many setbacks that they began to take an emotional toll on this particular nurse, who had come to care for Meg very deeply.

 

I was given permission by the nursing supervisor to look at Meg’s daily lab results on the computer.  I became very familiar with what “normal” levels were for different chemicals in the body and would have daily discussions with the doctors and nurses about Meg’s progress.  A couple of times, I arrived at the hospital to find that the doctors were about to start a procedure that I knew nothing about.  I would insist that they hold off until I was given a thorough explanation of the procedure and understood the risks as well as the benefits.  

 

I wanted to support Meg in every way I could because she was really struggling with keeping her spirits up.  I went to the hospital every day, often twice a day.  When I was at the office, I would fax her little notes of encouragement.   I urged her to look at every small achievement as a victory, and to continue to look forward rather than dwelling upon what had happened.  Her mom had given me a prayer for healing, which I brought to the hospital and said with her twice a day.  I also said the rosary every day during my half-hour commute to and from Seattle.  An acting buddy of hers from the Bay Area had given her a little chrome “meg” that he’d taken off an old Oldsmobile Omega.  I put it on my dashboard in front of the speedometer so that all my energy was constantly focused on her and her healing.  

 

Thanks to the Internet, I was able to keep friends and relatives updated on Meg’s condition via e-mail.  There were about 85 people who received these e-mails, and they in turn forwarded the e-mails to hundreds of others.  Meg’s name appeared on practically every prayer list in the Seattle area.  Hundreds of people were praying for Meg in places as far away as the Philippines, Iceland, Indonesia and Singapore.  Old college friends and theatre buddies of Meg’s heard about her situation and e-mailed their support.  One was a vascular surgeon on Maui who actually ended up giving me a lot of guidance on some of Meg’s medical issues.  Many of Meg’s friends worked in the medical field, either as doctors, nurses or pharmacists.  These friends, who I referred to as “Meg’s Medical Team,” consulted with their own colleagues about Meg’s condition.  Everyone seemed to agree that it was miraculous that Meg was still alive.

 

The entire first month was a roller coaster ride.  Her pulmonologist tried taking her off of the ventilator on Day 12, but had to put her back on.  We were also waiting for her kidneys to begin producing urine.  She needed to be at an output of 1000 cc's before dialysis wouldn't be needed.  Unfortunately, her best day was 300 cc's and a couple of days it was less than 50 cc's.  I told everyone on the e-mail list to pray for her kidneys to start working.  Or, as my brother Christopher put it, "PEE MEG!"

 

She showed signs of improvement up until Day 14, and her blood came close enough to normal that her hematologist said he'd be signing off.  Then on Day 15, she began oozing blood from her C-section incision.  Her abdomen became more and more swollen--and the surgeons performed emergency surgery to try and find the problem.  Three liters of fluid and old liquefied blood were evacuated from her abdominal cavity.  Again there was no evidence of a bleeding site, so her condition could not be corrected.  They again had to give her lots of blood and blood factors and other fluids just to keep her pressure up.  Her body was in a septic condition.  After the surgery, we watched her sink lower and lower.  Her surgeon grimly informed us that she again only had 24 hours to live.  We stood by as the chaplain again performed the Sacrament of Healing.

 

Miraculously, with the help of God, the angels watching over her and all the other positive energy she received, she woke up overnight with her blood pressure close to normal!  It was fun watching the doctors try to figure out what had happened overnight!  When her surgeon came to visit her, his jaw dropped.  He knew that there was no medical explanation for Meg's survival.  

 

In the middle of the first month, Meg’s friend and colleague, Diane Landsinger of Boeing decided she wanted to do something to help.  Whenever people asked me what they could do to help, I would answer, “Give blood.”  Meg had been working with Diane as a contract diversity trainer just prior to entering the hospital, and had also done prejudice reduction training with her for the Anti-Defamation League A World of Difference Institute.  Diane wrote an article for the Boeing Lifeline, the company’s online health newsletter, explaining Meg's situation, the fact that Meg had already gone through 70 units of blood in just a few days and how the Puget Sound Blood Center was in desperate need of blood.  She coordinated a blood drive and 127 Boeing employees who did not know Meg donated blood in her name.  Those blood donations combined with blood donations from friends, my co-workers and Meg's co-workers totaled almost 200 units!  Diane delivered three posters full of signatures to me and I posted them in Meg's hospital room where she could see them everyday and realize how much people cared.  

 

 

Meg:  Everyday, when I felt depressed and hopeless, I would look at those posters.  I was so moved at the caring and generosity of all the donors, and felt that the least I could do was fight the good fight.  Those donors gave the gift of life--what better gift could one ask for?

 

 

Tom:  A couple more setbacks at the end of the first month made me realize that we had a long road ahead of us.  In addition to suffering another bleeding episode, Meg ruptured an artery in her abdomen while trying to sit up for the first time, resulting in a massive hematoma in her abdominal wall.  The hematoma pushed up into her diaphragm and her lungs and caused further breathing problems.  The doctors had never seen a hematoma that huge which explained their reluctance to give us a prognosis on it.  They decided to monitor it with the hopes that it would reabsorb on its own.

 

Meg and I had made the decision not to let Giancarlo come into the room while she was intubated.  We thought it would frighten him too much.  I did, however, bring Karina in to see Meg several times.  I would hold her close to her mommy and Meg would smile and cry.  It was difficult for Meg to go so long without seeing Giancarlo, but we thought it was the best decision at the time.  We did not want to further traumatize Giancarlo, who was already having problems dealing with no mommy, a new sister, and full-time day care.

 

Because it was determined that Meg would probably be on the ventilator for many more weeks, it was decided that she would undergo a tracheotomy, during which an incision would be made in her neck and a breathing tube placed into her trachea.  She had been intubated for four weeks.  Her bleeding had finally stabilized enough; at this point the trach would be more comfortable for her.  Of course, her doctor was required to inform me of the risks involved.  He did not paint a very pretty picture, and as a result I was extremely agitated during the surgery, which took longer than they had said it would take.  I breathed a sigh of relief when I was informed, three hours later, that the surgery was a success.

Meg:  Once the trach was in place, we allowed Giancarlo to come and visit me.  It had been four weeks since I’d seen him and I missed him so much.  I hoped that he would realize that inside this person with tubes coming out from everywhere, who couldn't talk, who could barely move, and was yellow from jaundice, was the mommy who loved him more than anything.  I think he did know that, but I also know that whenever he hears us talking about the hospital, he becomes very quiet and he puts his hands over his ears.  He does not want to relive that horror and hates being reminded of it.

 

Being able to see my children was one of the things that kept me going.  If not for them and Tom, I might have given up.

Tom:  The more aware Meg became, the more difficult it was for her to deal with her condition.  She was unable to sleep without drugs, so every night she would ask the nurse for sleep medication.  She never really slept more than three hours at a time, and even then, her sleep was not deep and restful.  I was afraid she would become addicted to the drugs so I insisted that she avoid certain ones.  I even tried to get her to sleep by massaging her feet, which worked!  I encouraged others to massage her feet.  If the nurses weren’t too busy, they did it too.

 

Meg developed what is known as "ICU Psychosis" in which a patient starts becoming paranoid and anxious.  It has to do with a disrupted sleep pattern.  The average length of stay in the ICU is one to two days--Meg was there for more than two months.  There is activity taking place in the ICU 24 hours a day--nurses coming in and out of the room and alarms going off all the time.  On top of all that, Meg had tons of medication in her system.  According to one of her night nurses, she went a full month-and-a-half without a good night’s sleep.

 

 

Meg:  As time wore on, I began to wonder if I’d ever get out of the ICU.  I dreaded being alone.  I hated dialysis.  My hands were shaking because of all the drugs in my system, which meant I could no longer write legibly.  In order to communicate, I had to point to letters on a piece of paper and spell out what I was trying to say.  Sometimes people would try to read my lips, but that was really frustrating, for them and for me.

 

Sometimes I thought about Jack Kevorkian.  It wasn’t exactly that I had a death wish, but I occasionally thought that it would be easier to just close my eyes and never wake up.  I had been in the ICU for so long.  I really didn’t see any end in sight.

 

Other times I thought about Christopher Reeve, especially when I had "pop offs" which is when your trach tube becomes disconnected and you can't breathe.  I remembered the image of sheer terror that came to my mind when he described that experience in his autobiography, Still Me.  The first time it happened to me was in the middle of the night.  It made me realize just how little control I had over one of the most basic functions of my body--breathing.  I frantically tried feeling where the tube should have been connected but I had no idea what I was doing.  I panicked.  Oh my God, I'm going to suffocate to death because no one will know that my trach came apart.  But of course they knew.  An alarm sounds at the nurse’s station when something goes wrong with the ventilator.  Within seconds (although at the time it seemed like forever) a respiratory therapist came strolling in and quickly reconnected the tube. The "pop offs" were something I never got used to.  Plus, I thought, what if no one was at the nurse’s station when the alarm went off?  It was too horrifying to think about.

 

 

Tom:  In early February, the doctors finally determined what caused the cardiac arrest and subsequent ARDS and DIC.  Meg had suffered an amniotic fluid embolism (AFE).  This is an extremely rare condition in which amniotic fluid somehow gets into the bloodstream.  The incidence of AFE is 1 in 80,000 and the mortality rate is 86%.  (In fact, because so few women survive AFE, the diagnosis of this condition is usually made during autopsy.)  Both DIC and ARDS can occur as a result of AFE.  DIC has an 80-90% mortality rate and ARDS has a 40% mortality rate.  Because Meg had survived all three of these conditions, she was known as "The Miracle Patient" at Swedish.  She had beaten the incredible odds that were stacked against her.  Still, we weren’t sure what her quality of life would be once she was able to breathe off the ventilator.

 

The kidney specialist was beginning to think that maybe Meg's kidneys would never function again.  He brought up the possibility of permanent dialysis.  He even mentioned the possibility of a kidney transplant down the road.  The dialysis access in Meg's neck, which was a central line directly to her heart, was not intended for long-term use and her doctor feared it would become infected.  He suggested putting a Gore-Tex shunt in her left forearm to connect an artery to a vein and provide dialysis access.  I put him off for about two weeks, because I really believed her kidneys would come back.  But finally I had to relent, and surgery #7 was performed to insert the shunt into her arm.  Her arm was extremely painful and swollen and she had to sleep with her arm raised for several weeks.  I told everyone on the e-mail list to pray for her kidneys.  I also obtained a reflexology diagram that showed the part of the feet that affected the kidneys.  I massaged that part of her feet every day.  The doctors thought I was wasting my time.  But by the time the shunt was ready to be used, her kidneys had almost completely recovered, and the shunt was only used twice!

 

On Sunday, February 21st, we held a prayer vigil for Meg.  At this point, she had been in the ICU for 55 days.  Even though she was progressing well, we wanted to send a big powerful wallop of prayers and energy to help her turn the corner. There were about 25 people who showed up at our church in Seattle and at least 100 more throughout the United States.  My sister, Meegan, and her women’s group gathered in Indonesia while her boyfriend, Dave, and his friends joined the prayer vigil from a Buddhist temple in Singapore.  

 

Meg’s friend Trish, who lives in Walla Walla, also gathered friends at her house that night to meditate for Meg’s greatest good.  Trish’s friend, Teresa, is a clairvoyant who had been sending Reiki treatments to Meg telepathically.  (Reiki is a Japanese form of healing energy.)  That night as they meditated, Teresa broke out in a sweat and was weak after the session.  She said that so much healing was being pulled that she wondered at the power of their meditation.  Trish reminded her that there were many people gathered in prayer for Meg, and that explained what she was sensing.

 

 

Meg:  I remember the night of the vigil very vividly.  The nurse who had been assigned to me that night had brought in a couple of movies for me to watch.  He knew I had problems sleeping and the movies were something to help pass the time.  As usual, I called him to my room over and over again, just to ask him to massage my feet, or hold my hand, or just be there in the room with me so I wouldn’t be alone.  At one point while I was watching one of the movies, I looked over at the clock and realized the prayer vigil was taking place.  I closed my eyes and tried to quiet my thoughts.  Gradually, I felt warmth enveloping my body.  I knew everything was going to be okay.

 

 

Tom:  Meg was finally weaned off the ventilator in late February.  She was transferred to the renal floor in early March after more than two months in the ICU.  As she was leaving in her hospital bed, the entire ICU staff lined the hallways to wish her well.  There were so many tears shed, and the amount of love and caring that we felt from the staff was overwhelming.  It was a moment we’ll never forget.

 

 

Meg:  I spent two weeks on the renal floor continuing dialysis every other day.  It was during this time that I realized my muscles had atrophied.  One night I had a dream that I needed to go to the bathroom.  Somehow I had pulled myself to the edge of the bed and tried to stand up, and I immediately collapsed to the floor.  I laid there in pain for what seemed like an eternity.  I couldn't call the nurse because I couldn't get back up on the bed to reach the call button.  Thankfully, a nurse finally walked in to check up on me and was shocked to see me lying on the floor.

 

I was transferred to the rehab floor in mid-March (two-and-a-half months after giving birth) and spent the next month-and-a-half relearning how to walk and take care of myself.  It was a grueling schedule, beginning with speech therapy before breakfast, an hour of occupational therapy (OT) and an hour of physical therapy (PT) in the pool before lunch, another hour of OT after lunch and one more hour of PT in the gym in the late afternoon.  Once a week the recreational therapist, Lisa, would take a group of us out in the community with our wheelchairs and walkers so that we could get used to the outside world again.  We'd go to the Frye Museum, Starbucks, or Baskin-Robbins.  Lisa also took a liking to me and offered to use her new Watsu skills on me.  Watsu is water massage--Lisa would hold me in her arms in the pool and move me gracefully back and forth through the water.  It was an incredibly relaxing feeling, and the PT aides would even turn down the lights and put jazz music on.  Everyone there made me feel so special.

I never thought the day would come, but finally, on April 30, 1999, five months and one week after entering the hospital, I was released.  The staff gave me a beautiful going away party, decorating the dining room in the rehab unit as well as the door to my hospital room.  The table in the dining room was covered with a wonderful spread of food surrounding a delicious looking cake.  Lisa had invited everyone who had ever worked with me.  All morning, people from all over the hospital came by the party to wish us well.  After all that time in the hospital, I had made many friends and had even come to know quite a bit about their personal lives.  I was going to miss them, but I was also looking forward to going home and being with my family again.

I continued outpatient physical therapy for eight months at Swedish, then continued my PT program at a nearby health club for another seven months.  I slowly graduated from a walker to a cane, and then to walking without a cane.  However, I still experienced excruciating pain in my legs from nerve damage that was caused by my illness.  As a result, I was unable to be on my feet for more than 10 or 15 minutes at a time.  I also had a problem with keeping my food down which lasted for months.  I finally went through biofeedback to help me with that and very gradually I regained the ability to keep my food down.

Eight months after I was released from the hospital, I attempted to return to training a couple days a month; however, it was physically very difficult for me without an assistant.  Not only would I be exhausted, but also by the afternoon my legs would be screaming with pain because of the nerve damage.  Plus, I hadn't bonded with Karina for her entire first year of life.  Giancarlo had also been impacted adversely by the tremendous upheaval that had taken place in his life and it was showing in his behavior.  I decided to stay at home with them, at least until both were in school.  I felt that my life had been spared so that my children wouldn't have to go through life without their mother, and I wanted to maximize the time spent with them.

 

There are just a couple of residual problems from my ordeal.  My abdominal hematoma is very slowly reabsorbing, but I still look pregnant.  And the nerve damage in my legs is permanent.  I take medication for the pain in my legs and have been working out at a health club to try to get back into shape.  I may not be able to do many of the active things I used to do, such as skiing and playing tennis, but I am learning new ways of being active.

 

On April 13, 2000, almost a year after I had left the hospital, Tom and I hosted a thank you luncheon at Swedish Hospital for all the folks who had worked with me.  We were so grateful to everyone for saving my life and we wanted to show our appreciation.  About 65 people showed up and it was so gratifying to be able to see everyone again now that I was healthy.  It made everyone feel proud of the work they do.  Tom and I also had a very emotional moment when Christine Dickerson, the chaplain who had prayed for me when I had no heartbeat, walked in.  We cried tears of joy with this woman who was so instrumental in communicating with God so that my life would be spared.  Even though she is a real-life person, she will always be an angel for us.

 

Needless to say, this was an incredibly life-changing experience for us.  When you come so close to death, your priorities change really quickly.  When you are fighting for your life, little things that used to stress you out suddenly become unimportant.  I am grateful for every day that I'm alive.  I'm also grateful that I came out of that harrowing experience relatively unscathed. 

 

 

Tom:  Our faith has never been stronger. This was a gift--God wanted Meg to be here for our family.  I cannot even count how many miracles were at work here.  If you could have seen all the specialists walking out of Meg's room in the ICU with very baffled looks on their faces!  They supported Meg, and God and Meg did the work.

Epilogue:  Memorial Day, 2001.  It has been two-and-a-half years since my illness.  Life has pretty much returned to normal.  Giancarlo and Karina both attend Montessori schools in the morning and I spend my days taking care of them and occasionally doing some on-camera and voice over work, designing websites and writing. 

 

I am flipping through my copy of Simple Abundance by Sarah Ban Breathnach.  This wonderful book contains lessons for every day of the year—lessons that enable one to “encounter everyday epiphanies, find the Sacred in the ordinary, the Mystical in the mundane, and fully enter into the sacrament of the present moment.”  On a whim, I turn to the lesson for November 24th, which happens to be the date in 1998 that I first entered the hospital.  The lesson is entitled “The Blessing of Health.”  In it, Breathnach says:

 

“Health is a priceless gift from spirit that most of us take for granted until we become sick.  ‘One of the most sublime experiences we can ever have is to wake up feeling healthy after we have been sick,’ Rabbi Harold Kushner reminds us in Who Needs God.  ‘Even if it is only relief from a headache or toothache, the health we take for granted most of the time is suddenly seen to be an incredible blessing.’  Today, realize if you have nothing else but your health, you are a wealthy woman.  If you have a healthy mind, a healthy heart, and reserves of stamina and creative energy to draw on, the world is literally lying at your feet.  With your health you have everything.”

I turn the page to the lesson for November 25th, and there, at the top of the page, in big, bold letters, are the words, “When You’re Sick.”  Is this pure coincidence?  As I read the lesson, a passage I come across summarizes perfectly what I have been feeling:

 

“If I’d never sustained a head injury ten years ago, I don’t think I would have started my own business, written a syndicated newspaper column, or eventually published three books.  My nearly two years’ arbitrary sabbatical provided me with the opportunity to strike out on a new path after I recovered.  Every illness, from a cold to cancer, has a life-affirming lesson for us if we’re willing to be taught.  It can be simple or profound.  Learning to take better care of ourselves in the future in order to stay healthy.  Bringing more harmony into our daily affairs.  Balancing our need for rest and recreation with the demands of responsibility.  Appreciating the subtle nuances of the dark days as well as the light-filled ones.  Seeking Wholeness as well as healing.  Searching not just for a possible cure, but for the probable cause.”

 

There are still many times that I let little things get to me.  I sweat the small stuff more often than I’d like.  But there isn’t a day that goes by that I don’t think about how blessed I am to be here.  And I think that I’m still in the process of learning how to relax more.  When I’m feeling stressed or blue, I consciously try to bring myself back to the time that I couldn’t move, and I was on life support.  It gives me a much-needed perspective on life, and reminds me that it’s all small stuff.

 

* * *

 

Addendum to Meg's Miracle Story

 

A couple of years after my illness, I started doing some research to see if I could learn anything more about ARDS.  This is when I found the ARDS Support Center.  Through the ARDS Support Center’s Pen Pal Circle I met several people who would ultimately lead me on the path I was meant to take.

 

One person I “met” through the Pen Pal Circle was Dr. Steve Yarnall.  He mentioned that he was writing a book and wanted stories from ARDS survivors.  He only wanted about 500 words, and I had written about 2500 words, but I figured I’d give it a shot.  Imagine my surprise when I found out that not only was he inspired by my story, but he lived only 30 minutes away from me!   We made plans to meet for dinner at Salty’s at Redondo, a wonderful seafood restaurant on the Puget Sound, a mile away from my home.  Steve, his wife Lynn and their daughter Kim laughed and cried with Tom and me that night at dinner.  We shared all those common experiences that only ARDS survivors and caregivers can truly understand.  He was the first ARDS survivor I met in person.  Steve, Lynn, Tom and I have since become dear friends.

 

Another friend I made online was Carrie Walker-Bookless.  I also read her story on the Pen Pal Circle and noticed that she had been a patient at Harborview Medical Center.  I was looking for local people to reach out to, and had she not mentioned the name of the hospital she was at, I would probably not have written to her.  Initially, she seemed somewhat reluctant to talk about something that had caused so much pain in her life, but little by little, after exchanging several e-mails, she began to open up.  Steve, Lynn, Tom and I met Carrie, her husband, Tod, and her son Alex at their condo in Bellevue for dinner.  Again, it was such a wonderful experience for all of us to meet others who had been through the traumatic experience of battling ARDS and surviving it.

 

Several get-togethers followed—a play date with Carrie, Alex, my daughter Karina, and me.  A barbecue at our home.  And I began to realize that this was something that was benefiting all of us.  All of us were finally able to connect with others who had been through something that no one else could truly understand.  Being in a coma.  Being on a vent.  The hallucinations.  Being the caregiver and enduring weeks of not knowing what was going to happen.  Finally someone else understood!

 

After months of talking with another online friend, I took the plunge.  Eileen Rubin Zacharias, the founder and president of the ARDS Foundation of Illinois had contacted me because she read my story on the Pen Pal Circle and was trying to connect me with another woman who had developed ARDS after childbirth.  Eileen and I started emailing back and forth, and after sharing all of our common ARDS survivor experiences, found that we had much in common beyond that, including two small children ages 5 and 3.  When I told her I was thinking of starting an outreach and support group in the Northwest, she provided me with a wealth of information.   I didn’t want to duplicate her efforts; rather, I wanted to focus on regional in-person support and have my website provide links to the vast Internet resources already available. 

 

The Northwest ARDS Support Network website went online in November 2001.  We are currently operating under the fiscal sponsorship of the American Lung Association of Washington.  We’ve had our first official ARDS Survivors Potluck, which was an amazing gathering of survivors and caregivers.  We all shared our stories and looked forward to getting together again. In fact, just a month later, we did get together again, at the American Lung Association Breathe Easy Breakfast.  We plan on having regular get-togethers, and on supporting each other in any way we can.

 

We also, unfortunately, were the bearers of devastating news when Carrie, one of the people who inspired me to start the Northwest ARDS Support Network, passed away unexpectedly at the age of 31 on December 30, 2001.  Little did Steve, Lynn, Tom and I know that when we attended her holiday/housewarming on December 15th, that we’d be attending her memorial celebration in the same home less than a month later.  Although Carrie wanted the memorial to be a celebration of her life, we were saddened that someone we came to know through the shared of experience of ARDS had had her life taken away from her at such a young age, leaving behind a husband and a young son.

 

As far as my health goes, I still have the nerve damage in my legs, which probably will never go away.  And my asthma did worsen after the ARDS, but it’s not too bad.  The one thing that really bothered me was the rectus sheath hematoma that made me look six months pregnant.  It never completely reabsorbed on its own, and I was resigned to looking pregnant for the rest of my life.

 

Then in 2001 I noticed a lump just to the left of my belly button.  I talked to my surgeon about it and he said it was an incisional hernia.  I had had so many abdominal surgeries during the time I was ill that the fascia had become weakened and developed a hole where the incisions intersected.  It just so happened that the hernia could not be repaired without also removing the hematoma!  I was ecstatic!  The doctors would never have operated on me just to remove the hematoma on its own because it was not life-threatening and the surgery would have been too risky.  But the hernia HAD to be repaired, and there was no other way to do it without removing the hematoma!  Boy did I luck out!

 

So on April 9, 2002, I went back to Swedish Medical Center to have the hernia repaired and the hematoma removed.  We requested the anesthesiologist who saved my life—what an emotional reunion that was!  My surgeon had also been involved in my care three years ago.  Almost everyone involved in this surgery was intimately aware of all the details of my case three years before—this was very important to us.  It’s funny--I had no fear at all about this surgery.  I was just thinking about the outcome—that I’d finally look somewhat normal again, and not have this constant reminder of my illness every time I’d look down and see my distended abdomen. 

 

Tom, on the other hand, was extremely nervous, and understandably so.  Almost every surgery I had during the two months I was in the ICU was an emergency surgery, and he never knew whether I’d come out alive.  So even though intellectually, he knew this was a very low-risk surgery, emotionally it was difficult to get past all of the feelings from before.  Fortunately, his brother Christopher distracted him for the three hours I was in surgery.  They ate Greek food, drank coffee, looked at Ferraris, BMWs and exotic sports cars.  They came back, got a private family room at Swedish, played cards and watched TV.  It also eased Tom’s mind when a nurse informed Tom an hour into the surgery that everything was going just fine.

 

Since I am writing this, you have probably figured that the surgery was a success.  Yes it was.  But beyond that, a very special thing happened in the hospital—something that made me feel like I’ve come full circle. 

 

Several people who I did not know came to my room.  One was a Labor and Delivery nurse who said to me, “You probably don’t remember me, but I was in the room when you coded.  I had heard you were in the hospital and I just want to say I’m so glad you made it.  It’s a miracle you’re here.”  Another was a phlebotomist who came to draw my blood.  He looked at my name and said,  “ You probably don’t remember me, but I came to your room in the ICU many times to draw your blood, but you were in a coma.  There were hundreds of us in the Lab who were praying for you.”  I actually did vaguely remember this man, because he would prick my finger and test my bleed times.  He told me how happy they all were that I had pulled through.

 

Another person who came to my room was an anesthesiologist.  He actually came to my room to take out my epidural, which was being used for steady infusion of pain medication.  Later that day, he came back and reintroduced himself.  He said, “Your name looked familiar, and then I remembered, Dr. Woodland had called me to assist at your code.”  So we talked for a long time about that night and what it was like.  He said to me, “Do you know what the chances are of you having normal kidney function after what you went through?  Almost zero.  Do you know what the chances are of you having normal brain function after what you went through?  Almost zero.  You are a miracle!”

 

It’s heartening that even after three-and-a-half years, all these people still remember me. They recall with great clarity all the details of what happened to me.  One likes to think they’re not “just another patient.”  How many thousands of patients do these people see over the years?  But yet, they remembered me, and even went out of their way to come to my room and wish me well.  That, in itself, is a small miracle.  And I would like to think that these little miracles will continue to happen for the rest of my life—a life made possible not only by the wonderful staff at Swedish Medical Center, but by prayer, and most of all, love.

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